You are not alone. There are approximately 750,000 people in the U.S with UC. It is important to find support with family, friends, your healthcare team, and with others going through similar challenges. Below are organizations and resources to help you connect with people coping with the challenges of UC
The Crohn's & Colitis Foundation is the largest non-profit, voluntary, health organization dedicated to finding cures for inflammatory bowel diseases (IBD). The Foundation’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. The Foundation works to fulfill its mission by funding research; providing educational resources for patients and their families, medical professionals, and the public; and furnishing supportive services for those afflicted with IBD.
Get the support you need in managing your Crohn's disease or ulcerative colitis. Participate in discussion boards, hear personal stories, ask questions to our panel of experts and much more.
IBD impacts the whole family, not just the patient. At the IBD Support Foundation, we recognize the importance of strengthening the family unit while addressing the psychological, social, and emotional needs of each patient. This is done through various programs including individual and family counseling, hospital visitation programs, peer mentors, school advocacy, and psychoeducational support groups for IBD patients and their families.
Guided by its mission to eliminate the challenges of rare disease, Global Genes® is one of the world’s leading rare disease patient advocacy organizations that serves and promotes the needs of patients and families touched by rare diseases. Since 2009, under the Blue Denim Genes Ribbons®, the unifying symbol of HOPE, Global Genes has been developing patient-focused education resources and advocacy tools, funding patient care programs, raising awareness, and helping raise funds for early investigative research. For more information visit www.globalgenes.org and follow @GlobalGenes on social media. Join the RARE conversation!